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ABPI Website
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Partnerships
- Working with patient organisations
Working with patient organisations
Our ambition is to put patients at the heart of what we do, developing and delivering medicines which can have the most impact on people’s health and wellbeing. ABPI is committed to embedding system-wide patient and public involvement across the life sciences research sector.
ABPI Patient Advisory Council
Discover ABPI's Patient Advisory Council, enhancing patient-centred approaches in healthcare. Learn how patient insights shape strategies and improve industry practices.
ABPI Patient Engagement Strategy
Our strategy sets out how the ABPI will deliver our commitments and make sure that patient engagement is consistently at the heart of our work.
Involving the public and patients as equal partners in the discovery and development of medicines is vital. The ABPI works with patient organisations and our members to improve how this is done.
The Maternal Health Project Group (MHPG) aims to help with national work to increase the opportunities for pregnant and breast-feeding women to access appropriate drug treatments.
The Multimorbidity Action Group (MAG), or ‘multiple long-term conditions’, refers to the diagnoses of two or more diseases, in the same person, at the same time.
Patient publications
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Best practice guidance: Supporting patient organisations to report industry funding
The ABPI Code of Practice places requirements on industry to publish annual lists of payments to patient organisations, and we endorse this approach. Currently, there is no similar requirement for those patient organisations in receipt of grants or funds from industry. In response, the ABPI has put together some advice for local disclosure mechanisms, based on current practice among industry.
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Best practice guidance: Supporting patient organisations to report industry funding
The ABPI Code of Practice places requirements on industry to publish annual lists of payments to patient organisations, and we endorse this approach. Currently, there is no similar requirement for those patient organisations in receipt of grants or funds from industry. In response, the ABPI has put together some advice for local disclosure mechanisms, based on current practice among industry.
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ABPI Patient Advisory Council Report
This report illustrates the impact that the inequitable uptake of innovative treatments can have on patients, their families and the health professionals who care for them.
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Working with patients and patient organisations - A sourcebook for industry 2022
Working with patients and patient organisations - A sourcebook for industry 2022
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Enhancing the Life Sciences Ecosystem in the West Midlands
The West Midlands is a burgeoning centre of excellence in this sector and is home to world-leading anchor institutions, including universities and research hospitals, led by pre-eminent clinicians and academics. Combined with a large and diverse patient population, this constitutes an ecosystem where scientific and clinical insights and industry innovation can be rapidly translated into patient benefit and economic growth.
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Our Patient Engagement Strategy
Our strategy sets out how the ABPI will deliver our commitments and make sure that patient engagement is consistently at the heart of our work.
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Working with patients and patient organisations - a summary
In response to COVID-19, we thought it would be helpful to summarise some practical guidance from the Sourcebook, with the aim of supporting companies to work compliantly with patients and patient organisations.
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Patients First: Pioneering Partnerships - Report of the joint AMRC / ABPI conference - 20 March 2018
This meeting, organised by the Association of Medical Research Charities (AMRC) and the Association of the British Pharmaceutical Industry (ABPI), was convened to discuss how the industry and medical charities can work together to put the beneficiaries of research efforts – patients – first.
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Putting patients first
Patients’ involvement in all aspects of healthcare and medicines is increasing. Patients and patient groups are ‘at the table’ earlier in discussions.
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Taking control: Our right to information
People with neurological conditions speak out Living with a neurological condition is a challenge. Consistent access to high quality and reliable information is fundamental to people's ability to manage their condition and maintain the best possible quality of life. A clear policy exists in the 2005 National Policy Framework, but the reality is very far from its aspirations. This report is based on the findings of research and a series of focus groups of people with a neurological condition.
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Finding the balance – Benefits and risks of medical treatment – A paper and consultation document
This document lays out central themes that lie within the larger concept of benefit and risk in our personal health decision making. It translates these themes into practical examples and suggests ways forward through a range of manageable initiatives involving a variety of stakeholder partnerships.
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Coming of age – Grown-up stakeholder involvement
A report of a meeting held on 25 November 2004 to discuss the involvement of health service users and carers in the way that health policies are developed, and to create and consider practical steps that can be taken.